A civic group yesterday called on the government to offer greater support to the families of people who suffer from the rare genetic disease Prader-Willi syndrome.
The issues facing such families were highlighted recently after a nine-year-old girl who had the disease was allegedly killed by her father.
The families of patients with the disease need a lot of understanding and assistance from the public and the government, Prader-Willi Syndrome Association director Chin Hui-chu (秦慧珠) said.
They also need regular visits by social workers to prevent tragedies, Chin said.
She urged parents of children with the disease to seek help outside their family circle.
The child who was allegedly killed by her father had been featured in a documentary on Prader-Willi syndrome released this year, produced by Shih Shin University’s Department of Radio, Television and Film.
On Thursday, police found the bodies of the child and her father, who was a taxi driver in New Taipei City (新北市). Police suspect it was a murder-suicide, prompted by the man’s inability to pay his debts and take care of the child.
People with Prader-Willi syndrome tend to have an intense craving for food and often develop diseases linked to obesity, such as diabetes and hypertension.
Chin, the mother of a Prader-Willi patient, said that as children with the disease grow older they want to have more control over their lives, which makes it more difficult to take care of them.
Taiwanese actress Big S, also known as Barbie Hsu (徐熙媛), and Chinese restaurateur Wang Xiaofei (汪小菲) officially announced their divorce yesterday, stating the decision was cordial and that they would be raising their two children together. The statement came by proxy through the couple’s legal counsel, filed by both Wang and Hsu. Hsu and Wang thanked fans for their love and support, with the couple saying that fate had blessed them with a time of happiness, and that they were grateful for their time together. They said that while they walked hand-in-hand as husband and wife, they would continue a cordial relationship as
DESTABILIZING: Beijing’s efforts to choke Taiwan, pressure its friends and hamper its democracy are a threat to the world, AIT Director Sandra Oudkirk said China’s provocative military activities near Taiwan are destabilizing and risk “miscalculation,” American Institute in Taiwan (AIT) Director Sandra Oudkirk said yesterday, reiterating the US’ objection to any unilateral changes to the “status quo” in the Taiwan Strait. Oudkirk made the remarks in a speech at the annual conference of the Association of International Relations in Taipei. “In the Indo-Pacific region, America’s effort to resolve and manage differences with the leadership of the People’s Republic of [PRC] faces distinct challenges,” she said, referencing a range of actions by China that she said run counter to the shared values and interests of the
CCP IDEOLOGY: MAC Deputy Minister Chiu Chui-cheng said the CCP’s consolidation around one leader would shrink the space for economic and private endeavors Beijing plans to intensify its unification campaign, a Mainland Affairs Council (MAC) official said yesterday in an assessment of statements by Chinese leaders, while stressing the importance of consensus among Taiwanese. At a conference on Chinese development and security prospects in the Taiwan Strait, MAC Deputy Minister Chiu Chui-cheng (邱垂正) noted key developments in Chinese Communist Party (CCP) rhetoric. Much attention has been given to the sixth plenum of the CCP Central Committee, which on Nov. 11 issued the party’s third-ever “historical resolution,” paving the way for Chinese President Xi Jinping (習近平) to retain power through next year’s leadership reshuffle, Chiu said. According
EXTRADITION POSSIBLE? The suspect, who is quarantining upon arrival in Xiamen, is accused of killing a coffee trader on a street near his house in Sindian District The suspect in an execution-style murder of a businessman in New Taipei City’s Sindian District (新店) has fled to China and officials are negotiating his extradition, the New Taipei City Police Department said on Tuesday. The suspect, surnamed Huang (黃), took a flight from Taiwan Taoyuan International Airport at 2pm on that day to Xiamen, where he is staying in a quarantine hotel, as required by Chinese COVID-19 regulations, the department said. Investigators accuse Huang of shooting dead a local coffee trader surnamed He (何) on a street near his residence when he was returning from dropping off his daughter at her